Monday, July 18, 2016

update

Sorry for not coming back and updating. We got results while we were away and then once home I debated even keeping the blog for some privacy reasons

But, for those who are sincere in caring about our family I wanted to at least let you know where we are at.

The rheumatologist  did not seem to think it was Juvenile RA or Lupus. He did tell us she is very flexible and double jointed.  Future gymnast?

It's been a roller coaster.  The initial phone call results were that Alysa had tested positive for Lyme and another tick derived illness called Babesia. 

Then Saturday, (2 weeks later) I get a copy of the test results in the mail and it seems I was not given the right info. She doe not have Babesia but something else called Anaplamosis. 

It's seems that there is still a debate as to Lyme being a right diagnosis at all. The Dr. from the pediatricians office  will be talking with the Pediatric infectious Disease specialists at Maine Med.

She had started a treatment for now but it's just the start. This could be a very long process.

I'm just tired and it's hot. I do not do well with the humidity.  Stress and being busy are taking it's toll on my health. So, I have taken steps to slow life down. I am letting go of Scentsy and trying to limit facebook. 

I had thought that I was already done with Scentsy but it does seem that I will be doing one last order at the end of the month. I forgot to remove my CC number from my workstation and the latest Scent of the Month kits was mailed out on the 15th. I need to keep my account open to get the commission check next month. I can still take orders until the 28th. I will close the party on Friday the 29th. 


Wednesday, June 29, 2016

6/29/16

Today had its share of frustrations but I did want to share one good piece of news. 

The appointment that was scheduled for Sept. 27th was made in error. The Dr. was a little upset and like, "Why haven't I seen this girl yet!" sooooooo we have an appointment THIS Friday!!



Tuesday, June 28, 2016

6/28/16

I feel like I am once again begging God for my daughters life. 
It's past 11. I should be sleeping. My body needs it's own rest to heal. I can't sleep. 

The last few days have brought out even more complications with Alysa. Tonight she once again was in tears before bed. 

It's leaving me feeling hopeless and scared. Scared something will happen before we get to see a Dr. who can help my little girl. 

I know that just wanting something so badly is not enough. I know that her healing is not in direct correlation to how much I pray or how much I beg God. It can't be. Then I would have to reason that I just did not cry out to Him enough to save Olivia. 

Tonight the issue was pain in her eyes. We have an already scheduled eye appointment on Thursday. I am just praying that any inflammation she may have will not cause any damage before then. 

I just want to know she is going to be okay.  

Maybe I am feeling this way because I am tired. I hurt. Pretty much from head to toe hurts.  But I know what's wrong. I know what is causing my hurt. I  should of had a stunt double take my place the moment the nails came out of the 2 boards going across our small deck.  I am thankful. I could have easily have broken my neck, my back or at least an arm or leg. And I know in time...I will heal. 

The trouble is...I don't know what is wrong with Alysa. There are theories. And there are ideas that they are not looking into any further. I still have my mommy heart saying that maybe one of these dropped possibilities needs to be looked into more. 

Praying that tomorrow I can get a referral for another Dr. for her that will look into this possibility more. 

My little girl went from being so happy and active to now having times she can't even stand up.

I am terrified and can never let her know. 

6/28/16

I feel like I am once again begging God for my daughters life. 
It's past 11. I should be sleeping. My body needs it's own rest to heal. I can't sleep. 

The last few days have brought out even more complications with Alysa. Tonight she once again was in tears before bed. 

It's leaving me feeling hopeless and scared. Scared something will happen before we get to see a Dr. who can help my little girl. 

I know that just wanting something so badly is not enough. I know that her healing is not in direct correlation to how much I pray or how much I beg God. It can't be. Then I would have to reason that I just did not cry out to Him enough to save Olivia. 

Tonight the issue was pain in her eyes. We have an already scheduled eye appointment on Thursday. I am just praying that any inflammation she may have will not cause any damage before then. 

I just want to know she is going to be okay.  

Maybe I am feeling this way because I am tired. I hurt. Pretty much from head to toe hurts.  But I know what's wrong. I know what is causing my hurt. I  should of had a stunt double take my place the moment the nails came out of the 2 boards going across our small deck.  I am thankful. I could have easily have broken my neck, my back or at least an arm or leg. And I know in time...I will heal. 

The trouble is...I don't know what is wrong with Alysa. There are theories. And there are ideas that they are not looking into any further. I still have my mommy heart saying that maybe one of these dropped possibilities needs to be looked into more. 

Praying that tomorrow I can get a referral for another Dr. for her that will look into this possibility more. 

My little girl went from being so happy and active to now having times she can't even stand up.

I am terrified and can never let her know. 

Wednesday, June 22, 2016

Some good news.

Got a message from the Dr. this evening. The most recent blood work seems to take Leukemia off the list of diagnostic options! This is a huge relief! I did not want to say anything to a lot of people because we were pretty sure the results would come back this week. We did not want to create excess worry...but it has been on my mind A LOT since the word was first brought up.

Also insert a happy dance. Her Celiac number was 2. That means after a year we have finally reached normal and no damage is being done to her intestines.  What a year!


6/22/16

Today Alysa once again woke up feeling good.  

Yesterday the kids got a box of homeschooling curriculum in the mail. (That will be a post in itself) This morning I took a picture to send the lady who sent it. Look at ALL the smiles.



 A friend had hoped to take her strawberry picking if it was a good day for her. I was happy that she was able to go.
She brought home some that she picked and our friend bought as a gift. So Sweet to eat and Sweet of our friend.


She did have a few good hours including getting some strawberries and then going to my friends house and playing some card games and watching bread rolls being made. (She would have helped if she could touch bread.)

By the time she came home at 2:00  she was "wilting."



 By 3:00 she had crashed completely.



Sadly, even if she had just stayed home and in bed all day I think she would have crashed the same. It's what happened all weekend.

The smile is gone. The tears have arrived.



Tuesday, June 21, 2016

this is NOT going to be an annual event

June 23, 2015


June 21, 2016 

Since Julia also has Celiac and there can be bone issues with that she will be getting a bone density test in the near future.

Advice to self

Don't Google your child's tests results before seeing the specialist. :(

6/21/16 Tuesday

After a very bad weekend Alysa had more lab work yesterday. Hopefully the results can rule  out some things that are concerning us.

Last night she was awake several times in the night but not in enough pain to come get me. 

This morning she woke up feeling really well. As the day went on the fever crept back and reached 103 by 3pm.   

Will update this post today. We are waiting at the Drs for Julia's cast appointment.


Sunday, June 19, 2016

I will explain more soon

For those who are not my friends on facebook I will try to make a post this coming week like we did back in 2006 called "From the Beginning" to explain what has been going on for Alysa for the last few months (and a very general update for the last couple years) 

6/19/16 weekend review

Saturday (facebook post)



Not the summer we were hoping for. 

(Being in bed in a dark room.
 Covered in blankets even though the room is 80 degrees)





Sunday. I stayed home with Alysa.  She was up at 2:45 am with a headache and a temp of 101.8.

Today has not been a good day at all. We took a nice long nap while everyone was at church. I am thinking it was close to 2 hours. She said she felt a little better when she woke up. 

It was probably about an hour later and she was back to not feeling well. We had been trying to avoid Tylenol or Ibuprofen today as she had been taking way more than I would like to see her using. 

By 2pm the headache and evelvated temp (still 101. 8)  had become more than she could tolderate so I gave her some Ibuprofen. 

(There was a video here but it does not seem to be working so I deleted it.)

A little bit later when she had a similar spell she repeated, "I just can't..." I asked her what she meant. Sadly she said, "I just can't make it through the day."

This is breaking my Mommy heart. I am not sure what I can do until her referral goes through. If they set her appointment for weeks out I will be fighting for her to be seen sooner. 

She will be getting more lab work tomorrow and we will be seeing her GI Dr. on Friday for her Celiac. 


Saturday, June 18, 2016

7.5 year later

I've had other blogs in the last 7.5 years.  They are tucked away now. Someday this blog will be given to Alysa to read. 

She wanted to look at the pictures today and I let her. She read a little bit here and there.  Knows what it was started for.  She knows that someday she will be able to read it all. 
I am not sure how to know when she is ready but it's not that time yet.  (that I am pretty sure of) 

I have decided since this blog was started to post updates about Alysa and Oliva I would start using it again to follow Alysa's journey now. 

Right now, there are more questions than answers. All I know for certain is that having Alysa not feeling well is breaking my heart.  

Thursday, January 29, 2009

January 2009

Mommy's littlest helper.









all ready for Sunday school.






Tyler at age 4



Happy Birthday






It’s 7pm. Pj’s have been put on. Teeth have been brushed. 4 books have been read. The kiddos are in their own rooms looking at books for awhile until lights out. Except for Katie. She is going back and forth between the rooms doing whatever she wants. We have to keep an eye on that one. She is really into climbing and getting into all sorts of things. Brian found her the other day sitting…in the toilet. She also wants to be my little helper by picking up things and putting them in the trash. Clothes, TV remotes, toys, new diapers, dishes, a whole box of SOS pads. Oh, and she put her toothbrush in the fish bowl once. That leads to others stories…..but that will be for later.


Katie also likes to try to help with the dishes still. That of course means mopping the floor after. She also fights me every time I try to vacuum. She has to do it. She also likes to be an independent eater. This is fine if the menu choice is a cracker or something but no, I can’t feed her anything. This can get rather messy when it comes to yogurt and applesauce. Sometimes she ends up with more than one bath a day. She really does well for her age using a fork and spoon but she still tends to wear a lot of it. She's also been pretty generous with her hugs and kisses lately. That does wonders to a mom's weary soul!

Alysa has quite the personality. The things she comes of with sometimes just cracks me up. She has picked up shrugging her shoulders somewhere when she answers, “I don’t know.” Her favorite things to do are to blow bubbles and watch Little People. She is a Mommy's girl.

Tyler turned 4 the week after Christmas. He is pretty proud of becoming my big boy. He has also handled the transition of having to wear glasses all the time now quite well. When the pediatrician’s office said I should have them checked out because he seemed to squint during a checkup they were doing I really thought nothing of it. I was a little shocked to hear that he would need glasses.
He is learning to spell now. He can spell TYLER, ALYSA, AMY, NANA and ZOO. He can name and recognize all the letters on the keyboard. He can count to 13. He is also learning verses for Sunday school. I am so proud of him. His sisters are just as smart.

I have of course have broken all my New Years Resolutions. I still try to plug away getting more organized and now for the first time in mt life - lose some weight. Today was a day of letting go. I donated all of Tyler's baby clothes to our church for a ministry there. There were 2 large and 1 huge bin full to the brim with clothes from 0-9 months of age. The only thing that I kept was the outfit that he came home from the hospital in. It was a little hard to let go but I really don't have the place to store them and who knows if I will ever need them again. They are at least somewhere they will be used when needed.
I had already let go of the girls clothes. I held onto a few a the twins outfits and some special things for Alysa. I will let her decide what she wants to do with them when she is old enough to understand. I also kept one thing I really liked on Katie. These are big steps for me. I was also able to finally let go of all my mom's clothes that had been in storage. I hope they are a blessing to the people they were given to. (There is still more that that I am unable to get to but am ready when I can get it)

It still doesn't seem real. Brian is taking our VHS tapes and recording them on to DVD's for me. We did our wedding video last night. I didn't watch much of it but still happened to catch the part of my mom being walked down the isle. I can't really describe how that made me feel. You want to handle it fine as you know in your head that it's been almost 2 years but it makes it feel like yesterday. Now that I think about it that may have been what triggered me to have lots dreams about both my mom and dad last night. Unfortunately they were not all really pleasant dreams. I hate it that your mind can do things like that.

Well, Katie has now been banned to the Pack n Play. While I was typing the above thought I could hear here push open the bathroom door. Due to the cold the house has shifted and the door will no longer stayed closed. Anyway, I finished the sentence I was on and went to check on her. She was in there less than a minute. I found her trying to brush her teeth....with Tyler's toothbrush and climbing once again into the toilet. So I must go now and get this kiddo washed up and into dry Pjs
I had to come back to fix a few typos so I thought I would add couple things about Brian. He is still working full time in Portland, still working with the DETOUR youth group at our church and still a great dad. During his free time he really likes to read. But, he is usually so tired that reading leads to sleeping. He's happy to have a new season of the TV show "24" on and likes the show Knight Rider. We were just talking a few nights ago remembering when we were first married we did not have a TV at all for the first couple of years. (by choice) We don't have cable or anything like that now just the basic channels we can get with an antenna. There is enough on to entertain us in the evenings when we are too lazy to do anything else but also enough on there to show us just how much trash there is on TV. That is also for another time.
My life is about to take a new turn. Katie is easily climbing out of her Pack-n-Play and crib. I knew she could climb out of the pen but she would usually stay in there, even up until last night. Not today. So, this means no more showers for Mommy during the day. I used to be able to put her in her pen for a few minutes and grab a quick shower while Tyler and Alysa watched a movie. Guess those days are over. It also means that we are going to have to look at getting Alysa's regular twin bed out of storage and letting Katie have her bed (which has built in rails)
Katie is to YOUNG to be getting to be such a BIG GIRL!!!!!!!




















Update to follow!




tonight while Brian is at a meeting (and after the kids go to bed) I AM GOING TO UPDATE THIS!!

Monday, December 08, 2008

first open house











I had my first BeautiControl Open House the other day. It gave me a good excuse to decorate for Christmas. This is the first year I have decorated in a long time. It's very hard as it was my mom's favorite time of year but I want to really try to enjoy it this year for the sake of my children. For those of you who couldn't make it I thought I would share a couple pictures from the Open House.

finally updating this



















grrr the pictures posted backwards....


ok. this is for you Liz.


Where have I been. Right here, thinking.....I really need to update the blog. It started out innocent enough. I wanted to update on Katie's 1st birthday.


The day before her birthday Katie got sick so it wasn't really her best day on the 8th. That night Tyler and Alysa woke up at midnight minutes apart....throwing up. This went on about every 30 minutes for 4 hours.....both of them.....hence ,the pictures of them sleeping on the floor with plastic bowls beside them. Thankfully Katie slept through this....it took a few days to recoup and it just became easier and easier to put off updating the blog.



anyway....Katie is now my big girl! She is quite the little jabber box. She says, "hi", "mamma."
"dadda" "duck" among other things. She is my monkey climber with NO FEAR!
This post is far from done but Brian and I have a show coming on that we like to watch together. I just wanted to at least get things started.

Monday, November 03, 2008

Pepsi or Coke

A year and a half today. I commemorated it with Cheeze Its and Pepsi. I think your preference would have been a Coke. I couldn’t quite remember. That made me cry. A simple phone call that I could not make. I solaced myself with the thought that I could of had Dr. Thunder and ended the debate altogether.

I was supposed to have a dentist appointment today. For other reasons I ended up having to reschedule it a few days ago. Now I am glad. A month ago I would have anticipated this being just another day. That is usually how these anniversary dates go. It’s usually the days leading up to them that are hard. Not this time. Today is hard. I have that “It’s hard to breathe feeling.” I think it’s the “I am trying not to cry in from of the kids” feeling.

On a very different note….

You know you need to dust off the ceiling fan a little more often when you do and they kids say, “It’s snowing!”

Speaking of snow, we saw it last Wednesday. It was just a sprinkle but it was snow!! So, winter is coming. Thanksgiving is coming. Christmas is coming. I am going to try really hard to enjoy it this year. Make it really special for the kids. Oh yeah, and birthdays are coming. Saturday will be Katie’s big day!! There will be pictures!!

Last year at this time when Katie was born we had just past the 6 months mark. I remember I started crying on the operation table just minutes after she was born because it became so real that mom was not there. And she wasn’t going to be walking through the door to meet Katie at all….ever…..


Oh God, why. WHY WHY WHY………


(initial thoughts...more to come)

Thursday, October 23, 2008

I know I recently posted this one of Alysa but when I found Tyler like this one night I had to laugh.


This would have been a better "before haircut" picture



This is the result of about 3 hours of fresh air and sunshine.


Wednesday, October 22, 2008

note to self

do not iron Tyler's Cubbies patch onto his vest....on the rug








and I just thought this was funny

lots of pictures

yeah, so the day before we are supposed to take their annual pumpkin pictures, Alysa decided to give herself a haircut. This isn't the best picture to show it but she went from this to

this. And by the time mom "Fixed" it she has lost all her curls. I hope they come back.
the following pics are from while ago
My dad came to visit (this is my biological father) Katelyn wasn't shy

Brian made these



Monday, October 20, 2008

God's Will for Our Life

"Our Decision

We today declare that Christ is the Lord and Master of our life.
We therefore will seek to discover God's plan for our life. By His power we will be obedient to that plan, starting now.

WHATEVER * WHENEVER * WHEREVER"

signed,

Brian and Amy Ritchie

I know that correct grammar would be our "lives." But, as husband and wife our lives are now "life" in a sense.

We have already made this commitment to the Lord but renewed it last night at our church's Mission Conference. I know this is a personal thing but it is a public thing too. We would love you to be praying with and for us as we continue to seek where the Lord would be leading us.

Saturday, October 04, 2008

no such thing as monsters

How do you convince an almost 4 year old boy that there are no such things as monsters? Any suggestions would be appreciated! Tyler is becoming quite obsessed with this.

Friday, October 03, 2008

My Princess


Alysa is 2 ½ today. My little princess. She’s learned so much from Tyler that some might not guess there is 15 months between them. I think she is super smart and super beautiful. She is also a mommy’s girl. She doesn’t want dad to help her with anything. It’s almost always, “I want my mommy to do it.” Though today when I scolded her for biting Tyler I did get a “I want my Daddy.” Sometimes when she is upset with me it’s, “I want Katie”

I am not one of those moms who thinks my kids are perfect. Alysa likes to bite and can have an attitude problem. She puts on this pouty face and I should be upset because of her disobedience but sometimes I have to just look away because it makes me want to laugh.

Bedtimes used to be pretty easy. She would just go to bed easy or go to her room and play until she fell asleep. Now she uses all the stops.


“I’m hungry.” “You just had supper not too long ago.” When that doesn’t work –
“I’m thirsty” “Alysa, you just had a glass of water when you brushed your teeth”…. That doesn’t work.
“I want you to sleep with me Mommy.” That doesn’t work either.
It’s so hard to resist a cute little voice. I promise her that if she goes to her room and lies on her bed and doesn’t keep yelling for me I will come in a lay with her for a couple minutes. I know there will come the day that she will not want me in her room - much less snuggling with her bed. I will enjoy it while it lasts.

Katelyn and Tyler have birthdays before the end of the year and I will use their days to shed a little light on them. Today is Alysa’s day.

I love you Princess.



you've come a long way baby girl
pillowcase from Nana Ritchie

Saturday, September 27, 2008

Great State of Maine Air Show 2008


Alysa got a little bored at times and entertained herself by trying to pull the tar out of the cracks. We bought them earmuffs that you wear while shooting guns. It was pretty loud there




Brian was very happy that we were actually able to make it onto the base for the airshow this year. They were supposed to close the gates at 1pm. By the time we got out of church and took Katelyn to her grandparents we were not going to make it. But, when we got there a little after 1 they were still letting people on. Since this was the last year for the Blue Angels to be coming to Maine we were really hoping to take the kids. Brian had spent most of the day Saturday at the airshow but because of the weather they were unable to fly.


I had the small camera and took pictures of the kids. Brian had his nice camera and got some good shots of the planes and such. I will try to get some of those are here another time.


Alysa is almost 2 and a half. The last couple weeks she has turned into a mommy's girl like never before. She is in the "I don't like Daddy stage" and doesn't want him to help her do anything. Poor Dad. Though I can get this treatment during the day when he is not home. If I have to discipline Alysa she will cry and say, "I want Katie."


Tyler and Alysa are in the midst of potty training. I don't think that it is going very well. My floor has been christened multiple times.....a day. Tyler will be 4 in December and I kept waiting for him to kind of initiate wanting to potty train himself. It didn't seem like that was going to happen so I just said one day, "ok. no more diapers. It's big girl and boy undies for you. We will see what happens." (They still wear diapers when sleeping) Well, it's an experience....that is for sure. I am certain it is much easier when you are only try to work with one child at a time but I know that parents withs twins or more go through this. (And, I would be if Olivia was here)


On that note.. I had a very strange experience a few nights ago. Alysa was having a bad night and was up multiple times. One of the times she had come out of her room and was lying on the couch. She was just so tired that she wasn't really responding to me. Her eyes were half open but kinda rolling around. I can't really explain it but for a moment I did not see Alysa at all. I saw Olivia. The girls, even though identical twins never really looked the same because of weight differences and Olivia's condition. Had all gone well, they would have looked identical. It's strange to think about two girls running around here looking like Alysa does now. It's not often but there are those moments that I see Olivia in Alysa's face. It's a very strange feeling and very sad.




I am still missing mom more that I can express. I am so overwhelmed as to what to do about her house. Though I had dropped the price $100,000! there is still no interest. The estate money is gone and I just don't don't know what to do.......more to come.....Katelyn needs to go to bed......