Tuesday, April 18, 2006
We are going to attempt to use this as an easier way to publish what is going on in our lives, and more specifically what is happening with our little girls (Alysa-left & Olivia-right). This will make it easier for everyone to hear things straight from us, rather than secondhand.
Over time we will go back and update everyone more on how we got to this point, but for tonight we will just cover what is going on right now.
Alysa is doing amazing! They have removed her feeding tube as she has been really doing well taking her feedings by bottle and nursing. She is maintaining her own body temperature and overall is making good progress toward coming home.
Olivia still needs a miracle. The damage to her brain is keeping her from clearing the secretions in her throat. Now they are starting to settle in her lungs and are beginning to give her pneumonia. This is potentially life-threatening for her. The doctors feel that with treatment they will be able to help her fight it, but that it likely could be an ongoing problem for her. Each time she gets sick, the treatment likely would involve putting her back on life support for her breathing.
The doctors are working with us to get her home as soon as possible so as to get our life back to "normal". This "normal" will be much different than before. We will have to learn to take care of her. This also means that before she can come she will need to have and recover from an operation to have a feeding tube inserted.
The difficult part of all of this is that in spite of everything, there is no guarantee that she will live. It is almost certain that barring a miracle, she will have very limiting disabilities. The point may come in fighting the pneumonia where we have to decide to let her (and God) fight it without intervention.
While not an easy decision to make, we want to do what is best for her, and not be selfish ourselves. We covet your prayers for wisdom and most importantly for a miracle for Olivia. We serve a mighty and great God who can make her completely healthy if that is His will.
Thank you for your time. We will try to update this nightly when there is time.
Posted by Amy Ritchie at 9:03 PM