Olivia had a really rough day today. She had been having relatively few spells for the past week or so. Starting last night she started having a lot again. Today when we were there, she would have one after another. It was really scary. Pray for all of us. This has been really emotionally draining.
I think that things are catching up with us. The lack of sleep. The emotional roller coaster. Hormones. Olivia was in the midst of one of her spells and had turned very blue. There wasn't a nurse right on hand that very second and Mom just kind of lost it. She left the NICU in tears. It was a little overwhelming.
Tonight it seemed like her life was on the balance again. As we stood there watching the nurses tend to her and give her oxygen to bring her out of her spell it hit us. At that moment, as with many of her spells, if we had just let "nature" take its course, Olivia, in a matter of moments would have no longer been with us.
Sometimes we wish we knew how long she is going to be with us. The girls have Precious Moments baby books. We think this a very appropriate as every moment we have with each of them are PRECIOUS MOMENTS - especially with Olivia. Moments seem to be all that we have with her. We miss so much of her life with her in a hospital 45 minutes away. That is why it is so important for us to have her home. Please continue to pray that we will be ready for her. Please pray that there will be available nursing help so that we can have someone with her at night. We know that many are praying for us and we are forever thankful.